Life Uninterrupted - Moss House

We are still appreciating all the calls, cards and wishes for a great recovery for Kagan.  I keep saying this but it does not seem enough that we are so thankful for all the support.  It really is not cliche to say that just a simple note makes a bad day better.

So many have asked us what is going on in our house.  What are we doing?  What do we have to do so I thought that I would just do a bulk update.

For us, we are really trying hard to keep life as normal as possible for us and the kids.  Obviously there are many things that are different but we are keeping what we can the same, especially for Kade and Kenadee.

Kaleb has went back to work!  I mean after all, that Lockheed insurance is our best friend these days.  I know it is hard for Kaleb to walk away back into "normal" knowing what is going on here but that is just the type of guy he is.  He works harder than any man I know and continues to provide so that I can take care of my babies.  It is a blessing to have him handling all of that for me.  He also is pitching in with the other kids and Kagan when needed.

Kade is enjoying summer.  He is the newest member of the Alonso football team and starts conditioning this evening.  Let's just say that his summer is pretty much dedicated to football with their schedule.   Kade also is spending time being Kade and his social self.  He is getting ready for his freshman year of high school to start but not too quickly.  He wants to enjoy as much of the summer as possible.  He will take enough of a break from football to go to Big Stuf with his youth group next week and he is excited for a week in Daytona.

Kenadee is still doing competition cheer.  She is flying on a senior level team this year and we are so excited that she is getting to do what she loves.  That girl loves to cheer!   Her team did such an amazing job last year that we can't wait to see them in action this year.   She goes to cheer several times a week for 3-4 hours per day.  She also will get a break to go to church camp, Big Stuf (Youth retreat), take a cheer camp and do a few other fun things.  She too is a social  butterfly and she keeps her calendar pretty full of things to do.

Kagan's summer plans got a little messed up.  He was selected as an Alpha (junior counselor) at church camp this year and he is going to have to pass this year.  We were so very proud of him for being selected and bummed he will not get to go.  He also is going to have to pass up Big Stuf next week also.  This is a really big bummer for him because he LOVES going to Daytona with his youth group.   God is always so big there but I have a feeling God is doing some big things here.

Kagan's treatment so far has not gone exactly as planned.  ( I am learning that plan is a very loose term when it comes to this process).  We have spent approximately 4 hours a day at the clinic where he is either getting a check up, chemo, shots or etc.   At home he has a regiment of care for his pic line, taking meds and the day to day of well being.  This, along with transporting to and from, takes up most of our daytime.

Kagan will be going back to the hospital for a 4-5 day stay next week.  This is when he will get his next really large dose of chemo drugs and start round 2.    This will be his protocol for the next several months but much better than the month we thought we might be staying at a time at first.   We stand ready to go to the hospital at the on sight of any fever, illness or complications. 

I spend my time at home doing the housework, cooking, planning, making appointments, calling on insurance/prescriptions, etc.  Most of this never seems to get done; but there is a limit the time I am spending on doing it because well I had a slap in the face that reminded me that spending time with my kids is way more important.

Currently, I am using up my saved up vacation time.  Good thing I had time saved and then I am going on an extended leave from my job.  This has been difficult in so many ways because I love my job!  Not working, not thinking about the clients and the day to day of my job has been difficult to give up.  I wake up thinking I need to handle this, I need to handle that....

Slowly, I am phasing my life into a new mold as is everyone else.   We are trying to live outside the diagnosis that Kagan got but also very aware that we must make it a priority.  It is a fine balance that is difficult at times.  We must plan based upon Kagan's counts.  Can we go to church, can we go to the movies, can we go to the store?  This has been "No" for several days but risking infection is just not worth it at this time.

So my calendar is full and ever changing.  Life at the Moss house is still life like anywhere else.  We just re-arranged, re-prioritized and made a new normal for us.