Results.....

As most of my family and friends know, Kagan had his PET and CAT scan test this past week.   In between those test we also had other doctor's appointments to round out our week.

While waiting for the PET scan Kagan got comfy with his music and got in a little rest.  I snapped a photo of him during his little nap.   He is still the cutest and most precious boy (even though he is 16!)

He doesn't read the blog often so it will be a little bit before I get a "Oh mom, why did you put that up?"   :)

I had to notify the kids, the grandparents and etc. before I could give everyone an update on Kagan's test results.  Sorry I did not return calls but it was a a whirlwind of events and since I am still medicated, I ended up in a nap myself for a few hours.

Kagan did not reach remission.  The cancer is still shrinking but he still has active tumor and it has spread into the thyroid.  The thyroid is a new place so we will have to watch it to see what is happening there in the next few months.

For now, this is what we know.

Next week he will be having surgery to remove the culprit completely.  Dr. Grizzoni's office will call us on Monday to schedule which day it will be.   It will then take two-three days for the biopsy results of that entire removed lymph node section to be available for review.  We will then see the oncologist to get the results next week.

The following week, we will go to the radiation oncologist to get the treatment plan for the radiation.  It is my understanding we will be focusing just on the affected areas to limit the amount of radiation he has to have.   It will be 5 days a weeks for months. 

In about 4 months (depending on radiation cycles) he will do another check of the areas with another PET scan.   In the meantime, his regular oncologist will be seeing him to check his blood work and all that to make sure that things are going smoothly.

He also is going to have to go to a doctor for suspicious freckle/mole on his belly.  His regular doctor and the oncologist both say it is very suspecious and since skin cancer is a common second cancer to the treatment Kagan has they will be taking a very close look to map his skin and determine if any areas need to be treated now. 

The area is in the lung is still noted but no change in size or metabolic activity.  They will continue to wait to deal with anything on the lung at this time and hope it is just a scarred nodule.  We will watch it closely however.

So, we continue to ask for your prayers.  Kagan really has taken this all with such a good attitude and I so wanted him to get the results he wanted today.  Unfortunately since this did not happen we are going to once again lay it in God's hands knowing there is a reason for this and cure in the future.

On the upside, the doctor gave him the green light to go ahead and go to Rock the Universe tonight.  It is at Universal Studios with our youth group.  It is a nice treat before the next parts of this process start.  I am glad he gets to go and have some fun because there is not a kid that deserves it more (says his mom :0) )

We will keep everyone updated as we move forward.