This last week Kagan has dealt with the healing of chemo sores in his mouth, a broke PICC line, a low blood count and being a little more sleepy. Then a two days ago he started saying that his neck was sore, like maybe he had slept on it wrong.
I began checking the culprit CONSTANTLY and noticed it was getting larger and puffier. When I would touch it I could feel fever in it but Kagan was not running any fever. Obviously, the doctor's knew we were coming in on Wednesday so we were to have it checked that day. When we were on our way, I noticed that the culprit had a white dot (looked like a pimple) in the center of it with even more red around it. It is about double the size then when the doctor last measured it a week ago.
So, we were already put on hold for chemo until the new PFT test could be done on Kagan's lungs. If he does not pass the test and there is an issue there could be a change in the chemo drugs because it means they are having and adverse action on his lungs and ability to breathe.
Then as soon as Dr. Panchoosingh looked at Kagan's neck he immediately began to take action. He said upon looking at it that there was no way this thing was staying in Kagan past this weekend! (Kagan not so happy but I am so glad to see this thing being aggressively beat down!)
Let me introduce you to the two doctors that I just adore for all their attention to Kagan and the absolute extraordinary care that they are giving them. I will be getting a photo with Kagan and them soon but I just pulled off their photos from their pages so that my Mom and Dad can put a face to the names of who I keep talking about.
THESE MEN ARE REAL HEROES TO ME!
Within the next hour we were admitted to the hospital, IV inserted, antibiotics being given, had an X-Ray and ultrasound! The surgeon and the two nurse practitioners were in to consult and to make a plan. They immediately scheduled Kagan for surgery tomorrow morning.
Our understanding is that they will put in a drain to get rid of the infection while also doing a biopsy to get some more tissue to send the pathologist. In a few days, Kagan will undergo another surgery to completely remove this area of lymph nodes once the report comes back so that they know exactly what they are dealing with here. (All subject to change :-))
As far as chemo the tentative plan is to get a PICC line back in after the infection goes away followed by chemo started. We are just praying that the timing does not require that Kagan be on Chemo during his birthday in just two weeks. It is the BIG 16!
We also learned today that there appears to be a manufactorer issue with the lot of Kagan's PICC line. They have been pulled from the hospital and they found his and sent it back to the manufactorer to see what happened with it. Great to know that we knew something wasn't right and for the amazing IV team for being on top of it. (Thanks to Stephanie, Wendy and Mani)
To pass the time I did allow him to sneak off in the wheel chair while waiting for the x-ray. Not sure it was allowed but hey the kid needed some fun for the day!
Even after the rough start to the day he had several friends (Janine, Abby and Sean) come to spend the afternoon/evening with him. Sure it made passing the time go by a little bit and not be so borrowed. Kaleb, Kade and Kenadee came up after Kaleb got off work.
Kaleb is off tomorrow so that he can be here for Kagan's procedures and hear what the doctors are saying. I am so very thankful for his company, bosses and their process to allow him to be a dad when it is important.
All and all, we have a busy day ahead of us tomorrow. We appreciate all the prayers that are being said for a safe surgery.
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