Well, here we are. Back in the hospital and ready for Round 3!
Can I tell you how much I love St. Joseph's Children's Hospital? Seriously, I am so impressed with the love, compassion and concern that the nurses, staff and all give to us when we are here. As soon as we approach they know Kagan by name. They remember what he likes, his stories, things about our family and etc. It is not the kind of stuff that is charted in records but carried in the hearts of the great people who we are lucky to have caring for Kagan.
They make it possible to feel comfortable and at peace even while at the hospital. That is a tall order.
I did get the test results back. I think that I have now translated them to english from the medical jargon they are written in. I feel confident that the chemo is working. The doctors verbal is minimal at this point but all looking good.
There is still the question of the mass in the lung, the continued presence of "the culprit" on the neck and some abnormal findings in the colon. They will compare these to the next test before making any conclusive suggestions regarding these. No alarms but concerns.
We started back with the same treatment and holding off on radiation until after next round before making any decisions on that. Obviously this is a change to what we were expecting so we will continue to be patient and allow the chemo to work and see where we are. We at least have a plan for the next 21 days. (Until the change it that is!)
Kagan did have to get the PICC line re-inserted today but only with one lumen this time. Let's hope no more! I LOVE the IV team nurse that has done the PICC line insertion. Her name is Wendy and she is fantastic. Both she and the other IV team nurse Stephanie (love her too) were both here today to get the process started and we could not have been in better hands.
She had to make two incisions today. She let me snap this photo during the procedure for Kagan. She even posed and made monster sounds. You can tell she is pedi-nurse!
All sterile and using the ultrasound to find the catheter and making sure that it is working well.
I went to down the cafeteria to get some lunch and they had some big smiley face cookies. I brought one for Kagan and it was almost the size of his head. I hope this few days flies by for him and leaves some smiley faces for him without a cookie.
We will keep you posted as time goes on and let you know how he is doing. For now, fluids started and we hope to begin chemo between 6pm-8pm tonight. We will see how it works out but if I was a betting person I would say that it was going to be after shift change this evening.
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